There are a thousand moments that I adore everything about her. There are a thousand of her nuisances and quirks that bring a smile to my face. Her laugh has the ability to light up an entire room. Her encouraging heart melts me in a million ways. When she snuggles, she does it with all that she is. It is powerful.

But some times, on occasion, I am exhausted beyond comprehension. I am tired of the medical conditions, and the challenges, and the millions of things I have to think about and take care of. Some days I'm overwhelmed. Some days I feel sorry for myself and I think how completely unfair it is that this beautiful child will always have this... this illness.

Some days I want to crawl into a hole and hide.